12-17-11.....Heaven had a great night. Praise the Lord!!! Also....more great news.....no temp spikes. Glory to God!!!!! This morning tho, she had some strong sharp pains in her lower abdomin,so bad that she asked for the morphine, but we think that was due to the low rate digestive system or it could be from where they up'ed her intake of calories. Either way...she is feeling much better today. Her throat is still raw but not as bad as before. Please keep praying and keep those engouraging words and scriptures coming. Blessiings to all. <3
Update::: Heavens blood counts are still good except for the platelets but they may go up due to the fact that she had a platelet transfusion today. Her temp was taken at about 5:40 p.m. and her temp was 100.1....the higest its been all day today and last night. She walked with me to the elevator and then walked back to the room, she is so tough. She is now resting in bed with her little bear tobogin on that her Aunt Cynthia bought her...She is so beautiful!!!!!
O.K. There have been several people that has asked us how they can help us. I have told everyone the same thing and that was to pray but they say they would like to help in other ways.....So here is a list of the things that we could use and will a lot when we get home.....
Dreft Laundry Detergent (Heavens skin is now more sensitive)
Fabric for making mask for Heaven (and for other kids at hospital)
Then for the house we will need,,,,,
HEPA Filter Machine PRAISE THE LORD!!!! THESE WERE PROVIDED BY GODS CHILDREN
Oxy-Clean (mainly for whites)
Filters for the Electric Heater (size 16x20)
Anti-bacterial Dish Detergent
Fabuloso (for cleaning the floor)
The above list is items that will be needed to help Heaven stay as healthy as possible when we arrive home and we do expect anyone to go out of their way but I know many have asked about ways to help and this is what we could think of. Blessings to you all and please keep praying.....we have just started on this new journey.
When Heaven ws done with her shower today and she was dressed...she looked up at me with the saddest looking eyes but yet filled with joy and held her arms out to give me a hug, I almost started crying and We hugged each other and I reminded her that she was not going to have to fight this battle alone. She is so amazing...all of our kids are amazing.
We love you all so much <3