Thursday, May 23, 2013

A blessed week and a busy day

Update on Heaven.....Again I would like to thank my Lord and Saviour Jesus Christ for the Engraftment that took place on May 15th.....thank You Jesus!!!
This week we have had really good white counts...Mon. 4.5, Tues. 5.3, Wed. 6.3, and today it was 8.9.....Amen!!!
Although today Heaven woke up nauseated from a couple meds the docs are using trying to get the BK Virus in her bladder to subside, Dr. Rael ordered a CBC to make sure of no infections. So the CBC came back clear but Heaven needed a blood and platelet her RN for today was flushing one of the lines, it popped just like a balloon and made a quick hissing sound.
The RN asked if I had a clamp and thank God I did as we clamped it off to keep anything from getting in there to cause infection. Heaven got a little upset as the first thought was that she would have to have surgery to replace the line but Dr. Martin came to the rescue as he has repaired more than 25 of these line over the years.
So, the line was repaired, all meds and blood products had to be stopped for 4 hours, so now her pole (aka Slim Jim) is out getting a line change so that we can start the Vancomyacin at 4:00 just as an added at 6:00 she will be getting 2 blood and 1 platelet transfusion plus all her other meds that has had to be put on hold. Bless her heart she is so tired from all commotion but is resting well now.
Please continue to pray for grafts vs. leukemia, the grafts vs host to fade away for good (Dr. Driscoll was pleased with how the gvh looked yesterday) and for her to continue to get healthier with each passing day. Love and miss you all. Hugs from Durham xoxoxo

Monday, May 13, 2013

There will be showers of blessings......

The name of the song title tells it all....God is so good to us all, all the time.....

Update on Heaven Nicole.....Last night at midnight Heavens white cell count came back at 1.8 with an ANC of 820.....then this morning we received news that today is her 1st day of engraftment!!! Praise the Lord for He has been so good to us.

We still need everyone to pray for grafts vs. leukemia, the grafts vs. host to fade and go away, for a successful engraftment and also when she has 3 days of an ANC of 500 and above and a good WBC count the Dr's will make me an appointment to get my central line removed.

Heaven has been such a strong trooper through all this, as come tomorrow we have been her for 4 months and she has been confined to her room for 3 and a half months.....but the wonderful thing is, we can still look at each other, say "I love you" and know that we can still count on each other for strength.

I have to praise my Lord and Saviour Jesus Christ for had it not been for Him, none of this would be possible. I thank Him for guiding the Dr's to find a plan, I thank Him for the wonderful group of RN's that has worked with Heaven tirelessly to keep her encouraged and positive. I thank Him for this opportunity to bring her down to Duke Childrens (for there are some that can't get here that needs to), I thank Him for our insurance company (Cigna) wow have they been such a blessing, I thank Him for our family...even though the road was rough, we hung in there and leaned on each other, I thank Him for our friends who have been the silent watchers waiting for the right time to call to give a word of encouragement or just an ear to listen, I thank everyone (family, friends and those we may never meet on this side) for all the prayers as they mean so much to us, for the calls as all of you called at just the right time, for listening when we needed to cry and not being afraid to speak with compassion, for being there whenever I called, mainly, for just being there when you were needed.

We pray that the abundance of love that flows from the Throne of heaven to be gracefully poured upon all who have been with us through this journey.....though we aren't finished just yet, we are now seeing the light at the end of the tunnel.

"Thy Word is a lamp unto my feet and a light unto my path"

"Call unto me and I will answer thee and i will show thee great and mighty things which thou knowest not"

"I can do ALL things through Christ which strengteneth me"

"A merry heart doeth good like a medicine"

These are just a few of the Word of God that has helped us through, there are many, many more. Again, I say "THANK YOU Jesus for such a wonderful blessing and THANK YOU to everyone else for all you fervent prayers, calls, cards, gifts and just those simple hello's that we received...we love you all and you all mean so much to us. <3