Friday, April 6, 2012

Smurf Chemo

4-6-12.....Heaven has literally slept since about 9:00 p.m. last night and is still sleeping...that Benadryl must have been potent. Anyways, I stayed up until after midnight jsut so I could see what Heaven nick-named "Smurf Chemo"...Oh, my is it blue!!! THe RN last night (Jennifer) said it was the first time she had ever seen it herself. It ran over the course of 30 to 40 minutes and we were to look for bluish-green urine and also that the whites of her eyes could turn a bluish-greenish-yellowish color. I have included a picture of the "Smurf Chemo" for you all to see. Heaven will be on this through Sunday. I read that it is used for AML patients, Patients with advanced prostate cancer, breast cancer patients and patients with Hodkin's Lymphomia.
We will definately be keeping an eye on her temps and her BP even after we leave the hospital for it says that side effects can show up after about 10 to 14 days, so if this happens...we will bw abck up here for about another week or so. Thanks you all for your prayers, for thinking of us and your well wishes. Please continue on with praying for Heaven and our family. ♥ to all

Heaaven still isn't up to par for the course today, but she does have an apetite and I am very thankful for that. She has eaten so good and I pray that she continues to eat like this to continue to add weight that is needed. She was visited be a few different people today and it was very interesting to meet them too. Below are a few random pics that was taken throughout the day. Hope you all have a wonderfu day in the Lord.

First up...this is a label that no child should have to see.

This is a gift that Heaven picked out that came from Brinks & Wells Fargo employees

This is a gift from Kim Dickersons 3rd grade class at Gilbert Linkous Elementary School in Blacksburg, Va. Really sweet of those young children to think of other children that will be in the hospital over easter weekend. I'd give them all a hug if I could.

This is a gift that came fromt he Harman Family in memory of their son Chance Harman. So sweet of them to continue on with his memory and to continue to give back.

Here is a pic of Heaven's bag of Cytarabine...1460mg

This is the Harman Family Bunny that came to visit all the children here at Carilion Clinic Childrens Hospital. It is so sweet of them to continue on with their sons legacy.

This is Heaven's bag of "Smurf Chemo" or "Smurfamiacin" and Dr. Edwards calls it. In reality it is called Mitoxantrone. This is some mean stuff.

No comments:

Post a Comment