Today, my heart was rewound to an earlier date, a date in which Heavens hair had started to come out and I then proceeded to shave the remaining hair off. Well, today, she requested that her hair be shaved so that it won't be coming out all over her pillow and all. At first, I cried because I didn't want to so this, then after a receiving a big hug and comfort from Heaven and some encouraging words from Milton, I could then proceed to do what I had been asked to do.
Wow, the strength that God gives us.....Also, I was on the phone today with Duke for almost two hours talking about multiple things like Heavens type of treatments, her room, the floor she will be on, parking, activities, etc. I was also informed that Duke Children's Hospital had received Heaven HLA Typing, which is Human Leukocyte Antigen which is a series of tests done before a transplant to determine how closely the tissues of a donor and recipient match. I was told that they will begin looking for a match for Heaven as soon as possible.
Please continue to pray specifically as you all have been asked of. We would like to thank everyone for all your prayers thus far. I would also like for everyone to know that 100% of my focus will be on the well being of Heaven, so I ask that all of my family to please try and understand that I am not ignoring, setting aside, shunning, or trying to be rude.....I ask that you put yourself in my shoes (and Heavens) for a moment so that maybe you can understand why.
We love you all.....and we are all gonna love Heaven through it. Many blessings to you all and God bless.
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Wow, the strength that God gives us.....Also, I was on the phone today with Duke for almost two hours talking about multiple things like Heavens type of treatments, her room, the floor she will be on, parking, activities, etc. I was also informed that Duke Children's Hospital had received Heaven HLA Typing, which is Human Leukocyte Antigen which is a series of tests done before a transplant to determine how closely the tissues of a donor and recipient match. I was told that they will begin looking for a match for Heaven as soon as possible.
Please continue to pray specifically as you all have been asked of. We would like to thank everyone for all your prayers thus far. I would also like for everyone to know that 100% of my focus will be on the well being of Heaven, so I ask that all of my family to please try and understand that I am not ignoring, setting aside, shunning, or trying to be rude.....I ask that you put yourself in my shoes (and Heavens) for a moment so that maybe you can understand why.
We love you all.....and we are all gonna love Heaven through it. Many blessings to you all and God bless.
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For my daughter Heaven Nicole.....this sounds just like you ♥
I’ve endured this discomfort before and survived it, and so I can survive it again. I’ve felt these feelings before and sat with them, and so I can sit with them today. I’ve felt like giving in before and held onto hope, and so I can continue to hold on today. I made it through yesterday, and so, I can also make it through today.
I can do it.
I will do it.
I am doing it.
I am strong.
I am capable.
I will not give up.
I will never ever give up.
I’ve endured this discomfort before and survived it, and so I can survive it again. I’ve felt these feelings before and sat with them, and so I can sit with them today. I’ve felt like giving in before and held onto hope, and so I can continue to hold on today. I made it through yesterday, and so, I can also make it through today.
I can do it.
I will do it.
I am doing it.
I am strong.
I am capable.
I will not give up.
I will never ever give up.
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